Renewing Aldurazyme (Laronidase) Approval with Cigna in Georgia: Timeline, Documentation & Appeals Guide

Quick Answer: Renewing Aldurazyme Coverage with Cigna in Georgia

Cigna requires annual renewal for Aldurazyme (laronidase) with evidence of clinical benefit for MPS I patients. Submit renewal documentation 30-60 days before expiration through your specialist, including updated genetic confirmation, urinary GAG levels, and clinical response data. If denied, Georgia offers binding external review through the Department of Insurance within 60 days of internal appeal denial.

First step today: Contact your MPS specialist to schedule monitoring labs and begin gathering renewal documentation.

Table of Contents

  1. When to Start Your Renewal Process
  2. Required Evidence for Renewal
  3. Complete Renewal Documentation Checklist
  4. Submission Timeline and Decision Windows
  5. If Coverage Lapses: Bridge Options
  6. Annual Plan Changes to Monitor
  7. Appeals Process for Denied Renewals
  8. Personal Progress Tracker
  9. FAQ

When to Start Your Renewal Process

Start 60-90 days before your current approval expires to avoid treatment interruptions. Cigna typically approves Aldurazyme for 12-month periods, requiring annual reauthorization with clinical evidence.

Early Warning Signs to Begin Renewal

  • Insurance card shows new plan year (often January 1st)
  • Pharmacy notification about upcoming authorization expiration
  • 90-day mark before your last approved infusion date
  • Formulary changes announced for your plan year
Tip: Set a calendar reminder 90 days before expiration. Treatment interruptions can increase hypersensitivity risk when restarting Aldurazyme.

Required Evidence for Renewal

Cigna's renewal criteria focus on documented clinical benefit versus natural disease progression. Your specialist must demonstrate that Aldurazyme continues providing measurable improvement or disease stabilization.

Core Monitoring Data Required

Assessment Type Frequency Renewal Documentation
Urinary GAG levels Every 6 months Baseline vs. current levels showing reduction/stabilization
Physical function Every 12 months 6-minute walk test, joint mobility, growth parameters
Organ assessment Every 12-24 months Liver/spleen size via imaging or physical exam
Pulmonary function Every 12 months Spirometry or clinical assessment of respiratory status
Quality of life Every 12 months MPS Health Assessment Questionnaire (ages 5+)

Source: Sanofi MPS I Monitoring Guidelines

Clinical Response Documentation

Your renewal must demonstrate positive clinical response through:

  • Improvement: Reduced GAG levels, enhanced mobility, improved organ function
  • Stabilization: Halted disease progression compared to natural history
  • Slowed progression: Measurable delay in expected deterioration
Note: Cigna excludes coverage for mild Scheie syndrome patients, as clinical benefit is not FDA-established for this population.

Complete Renewal Documentation Checklist

Required Documents for All Renewals

Patient Information:

  • Current insurance card and member ID
  • Complete contact information and demographics
  • Updated weight for dosing calculations

Medical Documentation:

  • Genetic testing results confirming MPS I diagnosis
  • Original enzyme activity levels (IDUA deficiency)
  • Current prescriber information (must be genetics/endocrinology specialist)

Clinical Evidence Package:

  • Urinary GAG levels from past 12 months
  • Physical exam findings and functional assessments
  • Imaging results (liver/spleen size, if applicable)
  • Infusion reaction history and tolerance documentation
  • Prior therapy failures or contraindications to alternatives

Letter of Medical Necessity Template

Your specialist should include these key elements:

  1. Patient diagnosis with ICD-10 code (E76.01 for MPS I)
  2. Treatment history including start date and total duration
  3. Clinical response data with specific metrics and timeframes
  4. Continued medical necessity based on ongoing benefit
  5. Alternative therapy rationale explaining why other options aren't suitable
  6. Monitoring plan for the upcoming approval period

Source: Cigna Aldurazyme Prior Authorization Form

Submission Timeline and Decision Windows

Optimal Submission Schedule

90 days before expiration: Begin gathering monitoring data and lab results

60 days before expiration: Schedule specialist appointment for renewal evaluation

45 days before expiration: Submit complete renewal packet to Cigna

30 days before expiration: Follow up if no decision received

Cigna Decision Timeframes

  • Standard prior authorization: 15 business days
  • Expedited review (urgent cases): 72 hours
  • Additional information requests: 14-day extension possible

Submit through: Cigna provider portal, Express Scripts specialty pharmacy, or fax to prior authorization department (verify current fax number with your plan).

If Coverage Lapses: Bridge Options

Immediate Steps for Coverage Gaps

  1. Contact Express Scripts/Accredo immediately if your specialty pharmacy reports authorization issues
  2. Request expedited review if treatment delay poses health risks
  3. Explore manufacturer support through Sanofi's patient assistance programs
  4. Consider appeal filing while seeking temporary coverage

Restarting After Interruption

If Aldurazyme treatment is interrupted for more than a few weeks, your doctor should:

  • Restart at reduced infusion rate (25-50% of previous rate)
  • Premedicate with antihistamines 60 minutes before infusion
  • Monitor closely for hypersensitivity reactions during re-initiation
  • Document medical necessity for the treatment restart

Source: FDA Aldurazyme Prescribing Information

Annual Plan Changes to Monitor

Key Changes That Affect Renewal

Formulary updates: Aldurazyme tier placement or coverage status Prior authorization criteria: New documentation requirements or restrictions Specialty pharmacy network: Changes to designated infusion providers Quantity limits: Modifications to approved dosing or frequency

How to Stay Informed

  • Review annual enrollment materials carefully each fall
  • Check Cigna's formulary updates at cigna.com/formulary
  • Contact member services if you receive conflicting information
  • Verify specialty pharmacy network remains in-network

Note: Recent Cigna Pathwell Specialty Drug List changes in 2025 did not affect Aldurazyme, but monitor future updates.

Appeals Process for Denied Renewals

Georgia Appeals Timeline

Level Deadline Decision Time How to File
Internal Appeal 180 days from denial 30-60 days Cigna member portal or written request
External Review 60 days from internal denial 30 business days Georgia Department of Insurance
Expedited External Concurrent with internal (if urgent) 72 hours DOI expedited application

Filing External Review in Georgia

Contact: Georgia Department of Insurance Consumer Services Phone: 1-800-656-2298 Email: [email protected] Website: oci.georgia.gov/file-consumer-insurance-complaint

Required documents:

  • Internal appeal denial letter
  • Original prior authorization denial
  • Clinical documentation supporting medical necessity
  • Completed external review application
Important: External review decisions are binding on Cigna and free for patients. Success rates for rare disease appeals are not publicly reported, but federal data suggests 40-50% of denials are overturned.

Source: Georgia External Review Process

Personal Progress Tracker

Renewal Checklist Template

Current approval expires: ___________ Renewal submission target: ___________ Specialist appointment scheduled: ___________ Lab work completed: ___________

Required monitoring results:

  • Urinary GAG levels (date: _______)
  • Physical function assessment (date: _______)
  • Organ evaluation (date: _______)
  • Weight/dosing update (date: _______)

Submission tracking:

  • Renewal packet submitted (date: _______)
  • Cigna confirmation received (date: _______)
  • Decision received (date: _______)
  • Appeal filed if needed (date: _______)

FAQ

How long does Cigna take to approve Aldurazyme renewals? Standard prior authorization decisions take up to 15 business days. Submit 45 days before expiration to avoid coverage gaps.

What if my urinary GAG levels haven't improved significantly? Stabilization or slowed progression compared to natural history can support renewal. Your specialist should document this in the medical necessity letter.

Can I switch specialists and still get renewal approved? Yes, but the new prescriber must be a qualified genetics or endocrinology specialist and provide complete documentation of your treatment history.

What happens if Cigna changes my plan's formulary? You can request a formulary exception with clinical justification. If denied, the appeals process applies to formulary exceptions as well.

Does step therapy apply to Aldurazyme renewals? Generally no, since there are no FDA-approved alternatives to laronidase for MPS I. However, plans may require documentation of why hematopoietic stem cell transplant isn't appropriate.

Can I request expedited renewal if my current approval is expiring? Yes, if treatment interruption would pose immediate health risks. Document the urgency in your expedited review request.


Counterforce Health helps patients and clinicians navigate complex prior authorization and appeals processes for specialty medications like Aldurazyme. Our platform analyzes denial letters and plan policies to create targeted, evidence-backed appeals that align with each payer's specific requirements. Learn more about our coverage advocacy services at www.counterforcehealth.org.

When dealing with Aldurazyme renewals, having the right documentation and timing can make the difference between seamless continuation and treatment interruption. Counterforce Health specializes in helping families navigate these renewal processes with Georgia-specific expertise and payer policy knowledge.

Sources & Further Reading


Disclaimer: This information is for educational purposes only and does not constitute medical advice. Always consult with your healthcare provider and insurance plan for specific coverage decisions. Policies and procedures may change; verify current requirements with official sources.

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